Narzędzia do oceny stygmatyzacji w dermatologii
Dimitre Dimitrov 1 , Jacek C. Szepietowski 2Abstrakt
Stigmatization is the assignment of negative perceptions to an individual because of a perceived difference from the population at large. Skin conditions are frequently the reason of social rejection with a consequent negative influence on the personal and social life of patients. The aim of the current study was to review the available instruments that can be successfully utilized to measure the stigmatization level among dermatological patients. We performed our search on PubMed up to November 2016 and utilized combinations of key phrases containing such words as stigmatization, skin, dermatology, names of various skin conditions (psoriasis, vitiligo, acne, etc.), measurement. The search found a considerable number of articles – 548. After filtering them through a precise selection process, 58 articles remained. We concentrated only on the methodological aspects to assess stigmatization in various dermatoses. The review ascertained that there exist numerous instruments in the form of questionnaires. They were utilized in various researches in order to assess the stigmatization level in patients with skin problems. We divided them into two main groups: dermatology specific instruments (6 questionnaires) and dermatosis/disease specific ones (8 questionnaires). It is recommended to use dermatology-specific instruments to compare the stigmatization level in various skin conditions. They can be utilized as well as a first line tools to study the feeling of stigmatization in specific skin diseases; however, where it is possible, they should be supplemented with the disease-specific instrument for deeper analysis of both qualities of life and stigmatization.
Przypisy
- 1. Anandaraj H.: Measurement of dehabilitation in patients of leprosy-a scale. Indian. J. Lepr., 1995; 67: 153-160
Google Scholar - 2. Barnack-Tavlaris J.L., Reddy D.M., Ports K.: Psychological adjustment among women living with genital herpes. J. Health Psychol., 2011; 16: 12-21
Google Scholar - 3. Berger B.E., Ferrans C.E., Lashley F.R.: Measuring stigma in people with HIV: psychometric assessment of the HIV stigma scale. Res. Nurs Health, 2001; 24: 518-529
Google Scholar - 4. Brieger W.R., Oshiname F.O., Ososanya O.O.: Stigma associated with onchocercal skin disease among those affected near the Ofiki and Oyan Rivers in western Nigeria. Soc. Sci. Med., 1998; 47: 841-852
Google Scholar - 5. Ginsburg I.H., Link B.G.: Feelings of stigmatization in patients with psoriasis. J. Am. Acad. Dermatol., 1989; 20: 53-63
Google Scholar - 6. Gussow Z., Tracy G.S.: The phenomenon of leprosy stigma in the continental United States. Lepr. Rev., 1972; 43: 85-93
Google Scholar - 7. Hrehorów E., Salomon J., Matusiak L., Reich A., Szepietowski J.C.: Patients with psoriasis feel stigmatized. Acta Derm. Venereol., 2012; 92: 67-72
Google Scholar - 8. Kimball A.B., Jacobson C., Weiss S., Vreeland M.G., Wu Y.: The psychosocial burden of psoriasis. Am. J. Clin. Dermatol., 2005; 6: 383-392
Google Scholar - 9. Lawrence J.W., Rosenberg L., Rimmer R.B., Thombs B.D., Fauerbach J.A.: Perceived stigmatization and social comfort: validating the constructs and their measurement among pediatric burn survivors. Rehabil. Psychol., 2010; 55: 360-371
Google Scholar - 10. Liasides J., Apergi F.: Predictors of Quality of Life in Adults with Acne: The Contribution of Perceived Stigma. icCSBs 2015 January; The European Proceedings of Social & Behavioural Sciences eISSN: 2357-1330
Google Scholar - 11. Lu Y., Duller P., van der Valk P.G., Evers A.W.: Helplessness as predictor of perceived stigmatization in patients with psoriasis and atopic dermatitis. Dermatol. Psychosom., 2003; 4: 146-150
Google Scholar - 12. Masnari O., Landolt M.A., Roessler J., Weingaertner S.K., Neuhaus K., Meuli M., Schiestl C.: Self – and parent-perceived stigmatization in children and adolescents with congenital or acquired facial differences. J. Plast. Reconstr. Aesthet. Surg., 2012; 65: 1664-1670
Google Scholar - 13. Masnari O., Schiestl C., Rössler J., Gütlein S.K., Neuhaus K., Weibel L., Meuli M., Landolt M.A.: Stigmatization predicts psychological adjustment and quality of life in children and adolescents with a facial difference. J. Pediatr. Psychol., 2013; 38: 162-172
Google Scholar - 14. Miller-Keane Encyclopedia and Dictionary of Medicine, Nursing, and Allied Health, Seventh Edition. © 2003 by Saunders, an imprint of Elsevier, Inc.
Google Scholar - 15. Neil J.A.: The stigma scale: measuring body image and the skin. Plast. Surg. Nurs., 2001; 21: 79-82
Google Scholar - 16. Pichaimuthu R., Ramaswamy P., Bikash K., Joseph R.: A measurement of the stigma among vitiligo and psoriasis patients in India. Indian J. Dermatol. Venereol. Leprol., 2011; 77: 300-306
Google Scholar - 17. Schmid-Ott G., Burchard R., Niederauer H.H., Lamprecht F., Künsebeck H.W.: Stigmatization and quality of life of patients with psoriasis and atopic dermatitis. Hautarzt, 2003; 54: 852-857
Google Scholar - 18. Schmid-Ott G., Jaeger B., Kuensebeck H.W., Ott R., Lamprecht F.: Dimensions of stigmatization in patients with psoriasis in a “Questionnaire on Experience with Skin Complaints”. Dermatology, 1996; 193: 304-310
Google Scholar - 19. The Importance of Onchocercal Skin Disease; Report of a multi- -country study by the Pan-African Study Group in Onchocercal Skin Disease; 1995; WHO reference number: TDR/AFR/RP/95.1
Google Scholar - 20. van Brakel W.H.: Measuring leprosy stigma-a preliminary review of the leprosy literature. Int J. Lepr. Other Mycobact. Dis., 2003; 71: 190-197
Google Scholar - 21. Wittkowski A., Richards H.L., Griffiths C.E., Main C.J.: The impact of psychological and clinical factors on quality of life in individuals with atopic dermatitis. J. Psychosom. Res., 2004; 57: 195-200
Google Scholar - 22. World Health Organization. In: International classification of functioning, disability and health – Short Version, 1st ed. Geneva: WHO Publications; 2001; p. 1-10
Google Scholar